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Tender Details
- Country: United Kingdom
- Summary: Public Standing Group: Newborn Genomes Programme
- GBT Ref No: 92349941
- Deadline: 05 Dec 2023
- Competition: ICB
- Financier: Self Financed
- Purchaser Ownership: Public
- Tender Value: 100000
- Notice Type: Tender
- Document Ref. No.: tender_399833/1283938
- Purchaser's Detail :
- Description :
- Title : Public Standing Group: Newborn Genomes Programme
Location Of Contract : London
Industry : Research and development services and related consultancy services - 73000000 Management-related services - 79420000 Health and social work services - 85000000 Other community, social and personal services - 98000000
Value Of Contract : £100,000
Description : This procurement focuses on the facilitation and management of a group of members of the public drawn from previous dialogues to deliberate on: The implications of storing a baby's genome over their lifetime Other issues, as they arise, in the delivery of the Generation Study - particularly those which would benefit from public deliberation The group will need to run for a period of one year and examples of the issues that might be deliberated on include: - Expectations of genomics over a babies' lifetime: exploring acceptable uses - Involving young people as they grow up: navigating consent and assent - Disclosing genomic findings over a person's lifetime: how, when, why, who? - Relationships between genomic and wider health data - Health records and the incorporation of genomic data - Clinical access to genomic data: exploring the boundaries - Genomic futures: newborn screening implications for the future of prenatal testing - Reanalysing genomic da... - Documents :
Purchaser : GENOMICS ENGLAND
1 Canada Square London EC14 5AB England
Contact Person : Genomics England Ltd
Email :supplier.engagement@genomicsengland.co.uk
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